Peds Heme-Onc Hero Bead Program

herobeadelogo

Breanna

Provided by Capital Candlelighters Childhood Cancer Alliance

at the American Family Children's Hospital

Hero Beads let kids and teens with cancer or blood disorders commemorate your personal treatment journey in the form of a simple, visible medical record.  You will initially receive a cord with letter beads that spell out your first name, plus a Diagnosis bead and a bead representing the American Family Children’s Hospital.  Every time you have a procedure or pass a particular milestone, a member of your medical team can give you a special bead to add to your cord of beads.   Over time, Hero Beads provide a symbol of each patient’s personal journey, a touchable testament to strength and endurance.

Please talk to your nurse or Child Life specialist about the Hero Bead program.  Patients who join the program in mid-treatment are welcome to obtain one or more cords and collect the beads they need to “catch up.”  Patients who have already finished treatment or bereaved families may create a set by visiting the Capital Candlelighters office.  Call 608-231-8006 to set up a time to come in.

Here’s the list of available beads, subject to change: 

Procedure/Experience

Bead

Air Lift

Helicopter Charm

Biopsy Complete

Orange-Yellow-Red Striped Sphere

Birthday on Treatment

Balloons Charm

Blood Culture

Red-Green Striped Glass Cylinder

Blood Draw

Red Metallic Ball

Blood Transfusion

Red Heart

Bone Marrow Aspiration

Brown & White Swirled Tubed

Bone Marrow Transplant

Spiked Rainbow Ball

Cast

White Tube bead

Central Line Surgically In/Out

'Courage' charm/Smiley Cube Bead

Children's Hospital Bead

White Porcelain Rectangle w/ Red Kids

Course of Chemo

Green Wooden Bead

CT Scan

Cat Bead

Day Treatment

Decorated Wood Oval

Diagnosis

Gold Childhood Cancer Ribbon

Echocardiogram

Purple Wooden Ball

End of Treatment

Boy or Girl Dangle Charm

Finger Poke

Pony Bead

Hair Loss

Smiling Wood Disc w/ bandanna

ICU/PICU

Greent Turtle

IM Injection

Green or Pink Wooden Smiley Bead

Inpatient Admission

Bear Bead

IV Infusion

Multicolor Glass Flower Bead

Lumbar Puncture

Light Blue Disc

MRI

Pastel Sun Bead

Nuclear Med Scan

Gold Ball

Oral Med, new

Butterfly Bead

PET Scan

Round Pet Bead

Platelet Transfusion

Gold Disc w/ Moon, Heart, Star

Port Access/IV Placement

Red Wooden Star w. Yellow Center

Radiation

Blue Porcelain Disc w/ Yellow Sunburst

Relapse

'Hope' Charm

Remission, No Evidence of Disease

Wooden Smiley Call

Sedation

Pastel Moon Bead

Shunt Insertion

Clear Tube

Stem Cell Harvest

Spotted Multicolor Glass Bead

Surgery

Blue Star

Total Body Irradiation

Green Glass Star

TPC (IV Nutrition)

Holstein Print Cylinder

Travel Long Distance to Treatment

Red Train Bead

Ultrasound

Blue & White Spotted Glass Cylinder

X-Ray

White Bone Bead

Wish Trip

Airplane

WOW Bead (Special Accomplishment)

Gold Glass Bead with Black Swirls, Blue & White Dots

Years Off Treatment (1, 2, 3, etc.)

Number Beads

 

Safety Warning:  To avoid possible choking or strangulation, beads should only be worn with adult supervision.  Child should NOT wear beads in bed, while playing, on climbing equipment or while under sedation.  Parents of children under age 4 should collect the beads on their child’s behalf and display the strand of beads on the wall or in another safe place.