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Together we're better - Candlelighters Childhood Cancer Support Group

Non-Discrimination Policy:   Capital Candlelighters provides compassionate services to all children with cancer in our service area and to their families regardless of religious belief, racial or ethnic background, skin color, marital status, gender, sexual orientation or level of disability.

 

Peds Heme-Onc Hero Bead Program

Provided by Capital Candlelighters Childhood Cancer Alliance

at the American Family Children's Hospital

Hero Beads let kids and teens with cancer or blood disorders commemorate your personal treatment journey in the form of a simple, visible medical record.  You will initially receive a cord with letter beads that spell out your first name, plus a Diagnosis bead and a bead representing the American Family Children’s Hospital.  Every time you have a procedure or pass a particular milestone, a member of your medical team can give you a special bead to add to your cord of beads.   Over time, Hero Beads provide a symbol of each patient’s personal journey, a touchable testament to strength and endurance.

Please talk to your nurse or Child Life specialist about the Hero Bead program.  Patients who join the program in mid-treatment are welcome to obtain one or more cords and collect the beads they need to “catch up.”  Patients who have already finished treatment or bereaved families may create a set by visiting the Capital Candlelighters office.  Call 608-231-8006 to set up a time to come in.

Here’s the list of available beads, subject to change: 

Procedure/experience                 Bead

 Air Lift                                                             helicopter charm       

Biopsy Complete                                               orange-yellow-red striped sphere

Birthday on Treatment                                    balloons charm

Blood Culture                                                    red-green striped glass cylinder

Blood Draw                                                       red metallic ball

Blood Transfusion                                            red heart

Bone Marrow Aspiration                                 brown and white swirled tube

Bone Marrow Transplant                                spiked rainbow ball

Cast                                                                   white tube bead

Central Line surgically in / out                       ‘courage’ charm/smiley cube bead

Children’s Hospital bead                                 white porcelain rectangle w/ red kids

Course of Chemo                                              green wooden bead

CT Scan                                                            cat bead

Day Treatment                                                decorated wood oval

Diagnosis                                                          gold childhood cancer ribbon

Echocardiogram                                               purple wooden ball

End of Treatment                                            boy or girl dangle charm

Finger Poke                                                      pony bead

Hair Loss                                                          smiling wood disc w/ bandanna

ICU/PICU                                                        green turtle

I.M. Injection                                                  green or pink wooden smiley bead

Inpatient Admission                                       bear bead

IV Infusion                                                      multicolor glass flower bead

Lumbar Puncture                                             light blue disc

MRI                                                                   pastel sun bead

Nuclear Med Scan                                           gold ball

Oral Med, new                                                  butterfly bead

PET Scan                                                           round pet bead

Platelet Transfusion                                        gold disc w/ moon, heart, star

Port Access/ IV Placement                             red wooden star w/ yellow center

Radiation                                                           blue porcelain disc w/ yellow sunburst

Relapse                                                              ‘hope’ charm

Remission, No Evidence of Disease                wooden smiley ball

Sedation                                                            pastel moon bead

Shunt insertion                                                 clear tube

Stem Cell Harvest                                            spotted multicolor glass bead

Surgery                                                             blue star

Total Body Irradiation                                    green glass star

TPN (IV nutrition)                                           holstein print cylinder

Travel Long Distance to treatment               red train bead

Tube Insertion (NG, G-tube, Chest tube)     striped cube bead

Ultrasound                                                        blue and white spotted glass cylinder

X-Ray                                                                white bone bead

Wish Trip                                                          airplane

WOW Bead (special accomplishment)           gold glass bead with black swirls, blue & white dots

Years Off Treatment (1, 2, 3, etc.)               number beads

 

Safety Warning:  To avoid possible choking or strangulation, beads should only be worn with adult supervision.  Child should NOT wear beads in bed, while playing, on climbing equipment or while under sedation.  Parents of children under age 4 should collect the beads on their child’s behalf and display the strand of beads on the wall or in another safe place.

Our mission is to educate, support, serve and advocate for children with cancer,
their families, survivors of childhood cancer and the professionals who care for them.

 

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If your child is currently on the inpatient unit at the American Family Children's Hospital,

click here for links to

helpful resources

 

email us:

info(at)capcan.org